Fetal Health Foundation
Fetal Health Foundation supports families receiving a fetal syndrome diagnosis, funds life-saving research, increases fetal syndrome awareness, and shares leading medical information on fetal syndromes. Services & Resources: Facts about Fetal Diagnosis, Stories of Hope, Stories from the Media, Social Media posts.
Graham’s Foundation is a non-profit providing education and support for preemie parents. Parents can receive one-on-one support from parent mentors, or connect online through social media. A special MyPreemie App helps parents track preemie feedings, keep a list of questions to ask the NICU team, make notes, chart preemie’s growth, keep mementos and more. The app is free and available in English and Spanish. Services & Resources: Care Packages, Preemie Parent Mentors, Social Media Connections, MyPreemie App, Information about the NICU and child development.
Lily’s Hope Foundation
Lily’s Hope supports, babies and their families with unexpected and urgent needs due to premature birth. Services & Resources: “Packages of Hope,” “Preemie Pantry,” “Holiday Hope Baskets,” Family Support Group on Facebook.
NICU Awareness was established by Project Sweet Peas, a national non-profit, dedicated to empower and support families of fragile infants, and to inspire hope through remembrance for those affected by pregnancy and infant loss. NICU Awareness month is September. Services & Resources: Care Packages, Local Divisions, Food & Fuel Assistance Fund, Bereavement Support, Facebook Group.
The Skylar Project
Located in Alabama, The Skylar Project provides NICU Survival bags, gas gift cards, Sky’s Angel boxes, lactation support, and a 24/7 NICU peer line (251-270-2934). They create specialized “twin” boxes for families with multiples in the NICU. They host an annual book drive and an annual Bereaved Mother’s Day butterfly release. Their website includes a blog filled with tips for parents navigating the NICU experience. Services are primarily in the greater Mobile area. Services & Resources: Twin baskets, Survival Bags, Sky’s Angel boxes, 24/7 NICU Peer Line, Lactation Support, Gas Gift Cards, Bereavement Support.
The TAPS Support Foundation
The TAPS (Twin Anemia Polycythemia Sequence) Support Foundation is a not-for-profit aimed at raising awareness of TAPS through supporting research and helping families and medical providers connect with each other and with the latest findings. They offer support for families diagnosed with, or who had suspected TAPS during pregnancy and after birth, and connections for the challenges TAPS children may have in years beyond. Services & Resources: Webinars (TAPS, Long-term Impacts of TAPS, TAPS loss), Information on Diagnosis & Treatment Options, Research, TAPS & Multiple Pregnancy in the media, Facebook discussion group, etc.
The Twin to Twin Transfusion Syndrome (TTTS) Foundation
The TTTS Foundation offers educational and emotional support for families facing a diagnosis of TTTS. Services & Resources: several TTTS and bereavement support groups, information on TTTS, TAPS, SIUGR, and TRAP, and parenting special needs children.
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